Thursday, April 12, 2007

Celtic Fest at the Oncology Wing

Today we ventured over to St. Jo's here in St. Paul for a bone marrow biopsy. We've been there a lot lately, and they're unfailingly kind & thoughtful (valet parking!!)

According to Gerry, it was about as painful as you'd expect. He said he couldn't decide whether knowing it was coming made it more or less painful, but the doctor asked me to wait outside while they took a sample from the bones in both of Gerry's hips. His hips (and ribs) have been painful, so it may be that there resides a myeloma pocket. We're still waiting for the official diagnosis.

Tomorrow is a full body scan to check for further fractures. Poor Gerry. Moving around is very painful for him, his ribs ache, his hips are sore. I feel like I need to be more proactive in some way to get quicker care for him (but things are moving very quickly - honestly - too quickly!)

So I sat with some nice guys who were getting their chemo and we talked about motorcycles, dogs, Imus (EVERYONE in the ward had an opinion on that!) and knitting. While we were chatting a musician showed up and played her harp, I sat knitting - we presented a very homey picture of life in 19th century Ireland (in a chemo ward)

Just sitting and talking to folks felt good, and I was sorry that Gerry wasn't able to just sit around and shoot the breeze with these guys after his procedure. But he was pretty dopey and in pain, so we got home as soon as we could, in time for a nice visit with a friend who brought her son for a MUCH anticipated playdate for Maxie.

I did get a lot of knitting done today, and have my VK project almost finished. I wrote up the pattern this evening, and I'm ready to dive more firmly into a Lorna's Laces project tomorrow - back at the hospital! They really do try to make the experience as low-stress as possible, and it's so appreciated!

But stress is definitely here - and it's still too chilly to spend much time outside (which would be a nice stress reliever) The stress is making me want to eat a LOT, which I try hard not to do - I feel like every pound that Gerry's lost is firmly planted around my middle. I wrote to some friends that I'd like to get down to my fighting weight (and I don't mean Sumo...)

Han's got a crush on a boy down the street, it seems to be reciprocated (this week) and she 'ran into him' at the park after school. Hmmmm. It's too soon for THIS kind of stress!

A note on comments - I'm sorry they're showing up so late and all in a batch! My email is really wacky these days, I'm just too busy to investigate it in depth, but for some reason the comments aren't showing up in my comments moderation except in big batches hours and hours after they're posted. Oh, well...


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Anonymous 2paw said...

I wonder if you can ask for some drugs before anymore bone marrow biopsies?? I have had a few myself and I have some 'twilight' medication that pretty much makes it painless!! I am definitley not into the pain!! And it doesn't need to be painful at all. Good luck.

April 13, 2007 12:19 AM  
Anonymous Cyndy said...

It sounds like things are moving along and that you (Annie) are doing everything right. By the way, the commenter who said that MM is a childhood, genetic disease is fact, Gerry is on the young side and it is not likely that another family member will develop it.

April 13, 2007 6:29 AM  
Anonymous fiamma said...

My thoughts are with you. Knitting is always a comfort when you have something to deal with.
Your blurb on Hannah's crush made me laugh. I love that she "ran into him" LOL

April 13, 2007 12:50 PM  
Blogger donnac368 said...

Oh boy, BOYS. We've got lots of that going on here too with my gorgeous almost 16 year old red haired oldest daughter. My thoughts are with you and Gerry. We're going through a lot with my dad and his treatments.

April 13, 2007 12:58 PM  
Blogger knitncycle said...

Hang in there Annie (and Gerry). My thoughts are with you right now. Food is very comforting so it's natural to want to turn to it. Don't sweat it too much. Just try to find an activity that you like enough to want to do and go for it. Most of all, nuture yourself and your family.

April 13, 2007 2:34 PM  
Anonymous Anne in Atlanta said...

Prayers are with Gerry and your family Annie. :( I hope that most of all, they can help find a way to manage and mitigate his pain soon. Chronic pain is a horrible thing to deal with.

April 13, 2007 6:30 PM  
Anonymous Ann (yet another) said...

Hang in there! Sounds like a plan is coming together (to quote Hannibal Smith) I wished it was warmer today to sit on the porch and warm the bones as well, but nope. And it's supposed to rain for the next few days. At least it's not snowing here....yet.

April 13, 2007 7:12 PM  
Blogger Jen said...

Hi Annie,
I took a course with you at the Rhinebeck Wool Fest a couple of years back and was very sorry to hear about Gerry's troubles. I was diagnosed with MM last June and understand how Gerry's probably feeling right now. There really are no words. Like Gerry I'm very young to have this disease.
My MM was discovered because of 5 crushed vertebre and several broken ribs. The Zometa helped hugely within a couple of months. My treatment hasn't been fun, but has not been so awful that I can't work at my office job. It's a terrible thing to go through, but I've found there are more fellow sufferers than I would have thought, and the caring support of both friends and strangers is inspiring.
You're probably being showered with advice so I won't give any. I am available however if you or Gerry need someone to talk to, need an opinion, an info source, or just to confirm with a fellow sufferer that it really is incredibly tough to deal with.
Keep up the fight!

April 13, 2007 7:14 PM  
Blogger Queue said...

I had no idea at the time, being away at college for much of it, but when my dad was first diagnosed with colon cancer, my mom struggled for a while in coping with it. It wasn't until dad was really looking like he was on the mend that she admitted it. I don't think I really new how serious things were, or perhaps I didn't want to deal with it. Hang in there, and enjoy the happy moments, they lighten the weight you feel on your shoulders. You and your husband will be in my prayers.

April 13, 2007 9:44 PM  
Anonymous Laura said...

Try some healthy munching - I am a stress eater too. I have been mixing sliced almonds, cranraisins, & chocolate chips together. Yummy & satisfying.
1 bag cranraisins
1/2 bag almonds
2 handful cchips
Put in jar or sealed plastic. Portable in sandwich bags.
Green tea is calming too! There are lots of good flavors out there - I love blueberry!
Take good care - remember if Mama ain't happy, nobody's happy. (Isn't that a crock!)

April 14, 2007 10:38 AM  

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