Yesterday I was admitted back for more scheduled chemo, this time a HUGE bag of Metheltrexone (?) was administered after some other chemo drugs, and now I stay at St. John’s for at least 3 days while they monitor me to make certain I’m handing the new chemo well. THIS is the high-power stuff (40 ml of it) that is the scary part of M=CODEX/Ivac (if I’m writing that correctly…) and I’ve been fearful of it.
Well, now it’s al in, they have me back on fluids (which make me pee like there’s no tomorrow) and I’m back on high dose dexemethesone, too, which has made my blood sugar SOAR up to 500 (I didn’t even know that was possible!) so I’m taking insulin, too.
My entire family has had Type2 Diabetes. I say, “has had” because my entire blood family – those who haven’t passed from cancer related stuff – has passed from diabetes/heart disease related stuff. The curse of the hillbilly-high-fat-and-sugar diet, and the curse of living in a cancer cluster (Parkersburg, WV) has taken it’s toll on my family.
I’ve never been thin, but compared to many in my family I’m absolutely svelt. Right now I’m round as a steroid-pill and bald as Uncle Fester, but when I’m not pumped full of dex I tend to be a bit thinner looking than I am now.
I made the choice when I was 16 to leave the Ohio Valley/WV area and go to college, then to NYC, and not to return. I knew that living with so much chemical input into the drinking water, so much coal dust in the rivers, and so much deep fried food would play hell with my health, so I chose to live where I could express myself artistically and be the person I always wanted to be – a New Yorker.
I was strongly affected by Television, my first role model was Anne Marie on THAT GIRL! Later my role model tendencies switched to Rhoda (and I DID work in costuming!) which made it SO ironic when eventually I moved to the Twin Cities.
Am I now channeling my inner Phyllis (post Lars, now…) and will I eventually end up in San Francisco? Is this part of the blog entirely senseless to those of you born after 1970? Sorry, childhood role models will remain childhood role models.
I’m not dealing with Gerry’s loss right now. I’ve made the decision that I will address it in full, with all of the emotions that entails, when I am better able to allow myself to. I’m not ignoring it, I cry, I’m sad, but I can’t give myself up to the grief and continue with my recovery as I need to.
I hope this doesn’t sound heartless. It is hard, like missing his memorial service, or not circulating with the dozens of folks who came to the house after the service. I promised my doc I wouldn’t put myself into close proximity with more than a dozen folks for infection’s sake, and I physically just couldn’t make it to the service. But more to the point, I don’t think, emotionally, I could have extended so much of myself and would have been able to keep the strength I need to get through this chemo, which is so damned hard.
The kids, I’ve been told, did a stellar job. Max taped it using professional equipment from SPNN, and he’ll be editing it together with some lovely family video that Andy fortuitously had transferred to DVD just a few months ago. When I have that edit, I’ll post it here so you can all see how amazing my kids are to have put something like that together. Amazing.
Max will return to college this well, probably while I’m still in the hospital. It’s been amazing to have him home, exactly what we all needed; a bit of normalcy. If this current chemo round goes well, I may be starting my FOURTH and FINAL chemo sometime around Nov 12, and then we shall see…
I have no idea, when this whole “cancer” thing is done, whether my body will be as it was before. I’m getting a growing sense that, like Gerry, I will ALWAYS carry the pain of the tumor in my back and the damage done by it’s growth into two vertebrae. Will I always be on pain meds to deal with the constant bone & spine pain? I guess these are things that will be revealed I I continue with my recovery/remission. Which are lovely words.